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Thank you to all that have read and responded to this!!!! I received the following response approximately 1 1/2 hours ago:
Nicole
I’m really sorry about the article. It was a press release we received to be used as filler. I understand that Type 1 diabetes isn’t preventable and I understand that the article was not clear on that. I also know the challenges Hailey has faced in dealing with her diagnosis. I would be interested in doing an article about Type 1 diabetes and possibly include Hailey in it to show the challenges and lifestyle changes that come along with it and how she’s dealing with this as a child.
Once again, I apologize.
I will make sure to post when a correction is printed
Thursday, July 31, 2008
Wednesday, July 30, 2008
For those that may be reading! Please help me fix this!
I am so angry right now. We live in a VERY small town, this paper has done several articles on Hailey and now tonight I read this:
If you could please take the time to send an email to the paper I would really appreciate it. I intend to call them 1st thing in the morning and I also intend to send a very long letter to the editor as soon as I can calm down enough to make sense. This is like a kick in the teeth! Every person in town is going to read this and think of Hailey All of the awareness and work I have done has been squashed in this crappy article.
The following is the article that was put in last year about Hailey, the author left the paper a couple of months ago and obviously the new guy didn't pay any attention at all to old articles
Photo Sharing - Video Sharing - Photo Printing - Photo Books
Photo Sharing - Video Sharing - Photo Printing - Photo Books
If you cannot read the scans please let me know and I will type the whole thing out. This paper is so small that they do not have a website. They do now have email so if you could direct emails to knewst@evertek.net I would very truly appreciate it. If you would like to call them I am more than willing to post the phone number.
If you could please take the time to send an email to the paper I would really appreciate it. I intend to call them 1st thing in the morning and I also intend to send a very long letter to the editor as soon as I can calm down enough to make sense. This is like a kick in the teeth! Every person in town is going to read this and think of Hailey All of the awareness and work I have done has been squashed in this crappy article.
The following is the article that was put in last year about Hailey, the author left the paper a couple of months ago and obviously the new guy didn't pay any attention at all to old articles
Photo Sharing - Video Sharing - Photo Printing - Photo Books
Photo Sharing - Video Sharing - Photo Printing - Photo Books
If you cannot read the scans please let me know and I will type the whole thing out. This paper is so small that they do not have a website. They do now have email so if you could direct emails to knewst@evertek.net I would very truly appreciate it. If you would like to call them I am more than willing to post the phone number.
Tuesday, July 1, 2008
REQUEST FOR CGMS: DENIED BY INSURANCE
A little more than a year ago my daughter was origionally denied insurance coverage to the MM minilink. After one short appeal we won insurance coverage for this life saving device and my daughter's quality of life has improved dramatically.
Now I am trying to help a friend of ours gain coverage. She has been through multiple appeals and the insurance company is still stating "investigational"!!! You cannot put a price tag on the ways the cmgs saves lives and improves quality of life while saving the insurance company money in the long term!
CGMS will become the "standard of care" in the near future if everyone stands up and says "I DESERVE the best medical care available"!!!
Sunday, April 27, 2008
Saturday, April 26, 2008
Wednesday, April 23, 2008
Invisible Mother.....
It all began to make sense, the blank stares, the lack of response, the way one of the kids will walk into the room while I'm on the phone and ask to be taken to the store. Inside I'm thinking, 'Can't you see I'm on the phone?' Obviously not; no one can see if I'm on the phone, or cooking, or sweeping the floor, or even standing on my head in the corner, because no one can see me at all. I'm invisible. The invisible Mom. Some days I am only a pair of hands, nothing more: Can you fix this ? Can you tie this? Can you open this??
Some days I'm not a pair of hands; I'm not even a human being. I'm a clock to ask, 'What time is it?' I'm a satellite guide to answer, 'What number is the Disney Channel?' I'm a car to order, 'Right around 5:30, please.'
I was certain that these were the hands that once held books and the eyes that studied history and the mind that graduated summa cum laude - but now they had disappeared into the peanut butter, never to be seen again. She's going, she's going, she's gone!?
One night, a group of us were having dinner, celebrating the return of a friend from England. Janice had just gotten back from a fabulous trip, and she was going on and on about the hotel she stayed in. I was sitting there, looking around at the others all put together so well. It was hard not to compare and feel sorry for myself. I was feeling pretty pathetic, when Janice turned to me with a beautifully wrapped package, and said, 'I brought you this.' It was a book on the great cathedrals of Europe. I wasn't exactly sure why she'd given it to me until I read her inscription:
'To Charlotte, with admiration for the greatness of what you are building when no one sees.'
In the days ahead I would read - no, devour - the book. And I would discover what would become for me, four life-changing truths, after which I could pattern my work: No one can say who built the great cathedrals - we have no record of their names. These builders gave their whole lives for a work they would never see finished. They made great sacrifices and expected no credit. The passion of their building was fueled by their faith that the eyes of God saw everything.
A legendary story in the book told of a rich man who came to visit the cathedral while it was being built, and he saw a workman carving a tiny bird on the inside of a beam. He was puzzled and asked the man, 'Why are you spending so much time carving that bird into a beam that will be covered by the roof, No one will ever see it. And the workman replied, 'Because God sees.'
I closed the book, feeling the missing piece fall into place. It was almost as if I heard God whispering to me, 'I see you, Charlotte. I see the sacrifices you make every day, even when no one around you does. No act of kindness you've done, no sequin you've sewn on, no cupcake you've baked, is too small for me to notice and smile over. You are building a great cathedral, but you can't see right now what it will become.
At times, my invisibility feels like an affliction. But it is not a disease that is erasing my life. It is the cure for the disease of my own self-centeredness. It is the antidote to my strong, stubborn pride.
I keep the right perspective when I see myself as a great builder. As one of the people who show up at a job that they will never see finished, to work on something that their name will never be on. The writer of the book went so far as to say that no cathedrals could ever be built in our lifetime because there are so few people willing to sacrifice to that degree.
When I really think about it, I don't want my son to tell the friend he's bringing home from college for Thanksgiving, 'My Mom gets up at 4 in the morning and bakes homemade pies, and then she hand bastes a turkey for three hours and presses all the linens for the table.' That would mean I'd built a shrine or a monument to myself. I just want him to want to come home. And then, if there is anything more to say to his friend, to add, 'You're gonna love it there.'
As mothers, we are building great cathedrals. We cannot be seen if we're doing it right. And one day, it is very possible that the world will marvel, not only at what we have built, but at the beauty that has been added to the world by the sacrifices of invisible women.
The Will of God will never take you where the Grace of God will not protect you.
Some days I'm not a pair of hands; I'm not even a human being. I'm a clock to ask, 'What time is it?' I'm a satellite guide to answer, 'What number is the Disney Channel?' I'm a car to order, 'Right around 5:30, please.'
I was certain that these were the hands that once held books and the eyes that studied history and the mind that graduated summa cum laude - but now they had disappeared into the peanut butter, never to be seen again. She's going, she's going, she's gone!?
One night, a group of us were having dinner, celebrating the return of a friend from England. Janice had just gotten back from a fabulous trip, and she was going on and on about the hotel she stayed in. I was sitting there, looking around at the others all put together so well. It was hard not to compare and feel sorry for myself. I was feeling pretty pathetic, when Janice turned to me with a beautifully wrapped package, and said, 'I brought you this.' It was a book on the great cathedrals of Europe. I wasn't exactly sure why she'd given it to me until I read her inscription:
'To Charlotte, with admiration for the greatness of what you are building when no one sees.'
In the days ahead I would read - no, devour - the book. And I would discover what would become for me, four life-changing truths, after which I could pattern my work: No one can say who built the great cathedrals - we have no record of their names. These builders gave their whole lives for a work they would never see finished. They made great sacrifices and expected no credit. The passion of their building was fueled by their faith that the eyes of God saw everything.
A legendary story in the book told of a rich man who came to visit the cathedral while it was being built, and he saw a workman carving a tiny bird on the inside of a beam. He was puzzled and asked the man, 'Why are you spending so much time carving that bird into a beam that will be covered by the roof, No one will ever see it. And the workman replied, 'Because God sees.'
I closed the book, feeling the missing piece fall into place. It was almost as if I heard God whispering to me, 'I see you, Charlotte. I see the sacrifices you make every day, even when no one around you does. No act of kindness you've done, no sequin you've sewn on, no cupcake you've baked, is too small for me to notice and smile over. You are building a great cathedral, but you can't see right now what it will become.
At times, my invisibility feels like an affliction. But it is not a disease that is erasing my life. It is the cure for the disease of my own self-centeredness. It is the antidote to my strong, stubborn pride.
I keep the right perspective when I see myself as a great builder. As one of the people who show up at a job that they will never see finished, to work on something that their name will never be on. The writer of the book went so far as to say that no cathedrals could ever be built in our lifetime because there are so few people willing to sacrifice to that degree.
When I really think about it, I don't want my son to tell the friend he's bringing home from college for Thanksgiving, 'My Mom gets up at 4 in the morning and bakes homemade pies, and then she hand bastes a turkey for three hours and presses all the linens for the table.' That would mean I'd built a shrine or a monument to myself. I just want him to want to come home. And then, if there is anything more to say to his friend, to add, 'You're gonna love it there.'
As mothers, we are building great cathedrals. We cannot be seen if we're doing it right. And one day, it is very possible that the world will marvel, not only at what we have built, but at the beauty that has been added to the world by the sacrifices of invisible women.
The Will of God will never take you where the Grace of God will not protect you.
Friday, April 18, 2008
Top 10 Reasons I love our new Endo!
10. Finger poke A1C which means a blood draw only once a year.
9. The endo answers all after hour/weekend calls.
8. Very thorough examination.
7. Office personel are friendly and talk with you not at you.
6. He is up to date on technology and prefers to use advancements. He is not hesitant to try the "new" stuff.
5. He did not belittle my fears about Mackenzie and told me I was justified in my fears with her!
4. He was able to get dh to participate and understand what I was dealing with.
3. I have phone numbers to reach a person anytime, day or night.
2. Spent as much time as we needed with them (3 hours!).
1. Listened to what I had to say and was impressed with our experience with the CGMS.
And just for fun ;-)
Dh says he is the smart twin of Apoo (Quick E mart)from the Simpsons. For anyone thinking about switching from an endo that they are not happy with, DO IT. I wish I had done this a year ago :-)
9. The endo answers all after hour/weekend calls.
8. Very thorough examination.
7. Office personel are friendly and talk with you not at you.
6. He is up to date on technology and prefers to use advancements. He is not hesitant to try the "new" stuff.
5. He did not belittle my fears about Mackenzie and told me I was justified in my fears with her!
4. He was able to get dh to participate and understand what I was dealing with.
3. I have phone numbers to reach a person anytime, day or night.
2. Spent as much time as we needed with them (3 hours!).
1. Listened to what I had to say and was impressed with our experience with the CGMS.
And just for fun ;-)
Dh says he is the smart twin of Apoo (Quick E mart)from the Simpsons. For anyone thinking about switching from an endo that they are not happy with, DO IT. I wish I had done this a year ago :-)
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