tag:blogger.com,1999:blog-5307417753171730896.comments2008-10-14T14:41:06.377-06:00nicolehttp://www.blogger.com/profile/17297187226992578775noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-5307417753171730896.post-68574637270445966512008-10-14T14:41:06.377-06:002008-10-14T14:41:06.377-06:00I found your blog from the Type1Parents site- and I so appreciate it. Thanks for being so honest and transparent. This post was exactly what I needed today... even months after you had written it. Blessings on you and your family. I added your blog to my 'favorites' and intend to check back in the future. I also hope to get my son on a Continuous monitor- but have not done the research yet- and was surprised too to see that the insurance company might fight me on it... Thanks again for your posts.SarahinCOhttp://www.blogger.com/profile/01093067990590981548noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-56768570619865496962008-07-18T11:34:43.150-06:002008-07-18T11:34:43.150-06:00Great post, Nicole!A Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-52741779089464950332008-06-09T21:39:38.170-06:002008-06-09T21:39:38.170-06:00Please feel free to post it. It is not mine, I found it on the CWD website on this thread: http://forums.childrenwithdiabetes.com/showthread.php?t=15143<BR/><BR/>It was very inspiring to me and actually describes my life so well!<BR/><BR/>I wish I knew who originally wrote it. Thank you so much for reading my ramblings, I hope the videos helped you.nicolehttp://www.blogger.com/profile/17297187226992578775noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-74704638712455507612008-06-09T20:22:35.168-06:002008-06-09T20:22:35.168-06:00I found your blog from the CWD forum. I wanted to see the videos you talked about. I found something even better - this post! It's beautiful! And hits home just perfectly with moms all over!! Thank you for sharing it! (I'd like to copy it for my blog, and give you the credit, of course. Would you allow that?)tiffanie1717http://www.blogger.com/profile/11123844431749934447noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-61451984060720199442008-04-18T14:49:25.295-06:002008-04-18T14:49:25.295-06:00Nichole, So glad you found a good endo :) that you like. That's quite the impressive feat!A Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-11805841053875435952008-04-12T14:17:07.805-06:002008-04-12T14:17:07.805-06:00Thank you Hailey for being a trouper! Dean should be getting a cgm in June when he's back from Ohio State this summer. I'll show him your video. I know it stunk for you, but it helps for us to see. Hang in there!!! OSUmom from CWDosumomhttp://www.blogger.com/profile/01255562929005876263noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-39357021335520952662008-04-02T17:31:10.722-06:002008-04-02T17:31:10.722-06:00Nicole<BR/><BR/>All I can say is ouch. God bless Hailey, this looks like a lot of work. And I'm used to a CGM.<BR/><BR/>Here's hoping this gets easier for all of us.Bernardhttp://www.blogger.com/profile/14936264471078732019noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-12927269994329727892008-02-19T16:08:39.513-06:002008-02-19T16:08:39.513-06:00Toni, how are things going for you? I was just thinking of you :-Dnicolehttp://www.blogger.com/profile/17297187226992578775noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-80343463299549124342008-02-15T15:38:12.095-06:002008-02-15T15:38:12.095-06:00Saying a little prayer for you, and M. Are you doing trial net testing? <BR/><BR/>Sorry H's sensor went bad. I hope the new one works better. <BR/><BR/>Take care, JamieA Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-67013432453139284112008-02-15T15:32:54.251-06:002008-02-15T15:32:54.251-06:00Love it, Nicole! I have a page bookmarked that has that in very long text explanation! I have to love how simple that chart is and it gets it's point across.A Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-89419999780475725582008-02-02T00:39:22.577-06:002008-02-02T00:39:22.577-06:00Road trips are hard with little ones. I'd say you pulled it off like a pro!A Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-42626612984087478802008-01-25T23:04:41.744-06:002008-01-25T23:04:41.744-06:00Lol, yep :-D Dh is playing it right now! The girls have battles and all. This is the first video game system that I have ever bought that I did not regret, and believe me, dh has a few ;-) <BR/><BR/>Wow, I need to get better at blogging! Thanks for the comment, off to see if you have anything new :-Dnicolehttp://www.blogger.com/profile/17297187226992578775noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-57190677259442632622008-01-25T22:57:18.364-06:002008-01-25T22:57:18.364-06:00Hi Nicole! Glad you found your Wii. Is it still all the rage in your house? <BR/>Take it easy, JamieA Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-6295088167236271962008-01-08T10:35:05.777-06:002008-01-08T10:35:05.777-06:00i bet it was worth it wasn't it?Cosmo Momhttp://www.blogger.com/profile/14296451764187931120noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-10179408504936580712007-12-24T16:12:27.354-06:002007-12-24T16:12:27.354-06:00Thank you so much toni! You have no idea how much your post means to me :-) You put a Christmas smile on my face. I hope the sensor is working great for you!nicolehttp://www.blogger.com/profile/17297187226992578775noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-61576051124470413402007-12-21T11:09:55.841-06:002007-12-21T11:09:55.841-06:00Thank you, thank you, thank you for sharing your experience with MM cgms. You have been a wonderful instructor! I have read all the information you so generously posted, reviewed pictures of arm sites, and purchased Radio Shack wireless mike. We are on day 3 of our first sensor (inserted in the arm last Tuesday), and I hope to get more days yet out of this sensor. Our initial sensor is and has been extremely accurate. Now I am reading your common sense explanations of why you, the parent, will determine what is in the best medical interests of your child instead of allowing the child to make the determination. Isn't that the way it has always been with other chronic illnesses? Why is diabetes the one condition where the child is allowed to determine protocol? We must keep our eyes on the long-term goal, not short-term problems such as "discomfort." We had no problems with site insertion, she did not even flinch. Her arm was a little sore for six hours afterwards but MM Nurse/CDE insisted we use the 45 degree angle on insertion so that was to be expected. The question to ask is: Can you control BS variations well without this device? We absolutely cannot! We have been living with Type 1 for two and a half years and this is the first light in the tunnel of darkness I have seen. I am going to follow the light. The complications of Type 1 are more than uncomfortable. Our only hope is to keep blood sugars in as normal a range as we can possibly get them. Thanks again, for clarifying a sticky issue. No I do not "hate" you, I thank you for your common sense advice.Tonihttp://www.blogger.com/profile/07543282839696294672noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-86895520080434998202007-09-06T02:59:58.931-06:002007-09-06T02:59:58.931-06:00LOL... I call my mum a vampire too!!<BR/><BR/>(although, i do my own checks now!)kitterhttp://www.blogger.com/profile/12223390361542105731noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-30090556487063411892007-08-20T11:31:49.763-06:002007-08-20T11:31:49.763-06:00Great video<BR/><BR/>I'm <A HREF="http://www.active.com/donate/bikethemiles/BernardF" REL="nofollow">riding next month</A> to support research for a cure. The research is by Dr. Denise Faustman, and I'm <B>very excited</B> about it.<BR/><BR/>For me, it's been 34+ years and I'm still waiting on a cure. Here's hoping for all of us.Bernardhttp://www.blogger.com/profile/14936264471078732019noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-6599385702791173062007-08-07T14:08:55.406-06:002007-08-07T14:08:55.406-06:00Congrats, I guess I need to get one of those pads. Know what it is called, or where to find info on it? My two middle boys wet the beds. I too hate goodnights, my kids leak through them anyways, so we have a few different things in place, but I'd love to have a way to not have to do it all anymore. We have to have a fleece blanket on top of their sheets because fleece doesn't absorb well. Then under that there is the sheet, and a pad, and the bottom layer before the matress is a waterproof sheet. The pad was supposed to be ater proof, but RC Willey's lied in what they said it could do..... <BR/><BR/>That is so awesome. I am just so happy for you guys!!! I hope it continues to work! <BR/>JamieA Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-84791321403124533172007-08-04T18:31:48.009-06:002007-08-04T18:31:48.009-06:00Hi Nicole. I am so sorry H is having such a hard time with site changes. We went through that for a while. It got easier. We eventually put Julia in therapy because she just doesn't feel normal. She feels so seperated from her peers. Have you talked about this with the endo, CDE, or children's life specialist? <BR/><BR/>What about talking about it with H on a day that isn't a site change day? Maybe she could give you some insite on what you can do to help her feel better about site changes. I know this view isn't a popular one, but what really helped me was to talk to Julia about what happens if she doesn't get her insulin. Realistically. It wont be possible to hold her down forever, and I know how scary that is to be trying to get your moving, fighting child with a sharp. I really hope you guys can find something to help.... <BR/><BR/>Take care, JamieA Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-44231064711846420882007-07-29T19:10:17.170-06:002007-07-29T19:10:17.170-06:00*sigh* such a hassle sometimes, and all the while you worry about what the BG is doing. <BR/>They get sick of it sometimes, as I would too. As adults, I imagine that they will, at some point, decide not to change a site, let the BG's run up high, and then figure out that they feel like crap and want to do a site change. <BR/>It would cost us our kids to do that now. <BR/>Sometimes I wait for Nolan to have a bg on the lower side, and we do a site change then, and I let him have the pump off for an hour... and he will come to me. <BR/>Poor Hailey. It is so tough for kids to have D. Tedious, and annoying, and just not cool. <BR/>Good luck my heart goes out to you. <BR/>JenJenhttp://www.blogger.com/profile/08699368692469314809noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-66741465778941905752007-06-22T12:09:39.162-06:002007-06-22T12:09:39.162-06:00Hi there! I just came across your blog and I wanted to say hello. My name is Kerri and I've been living with type 1 since I was six yrs old - over 20 years ago. I blog over at <A HREF="http://www.sixuntilme.com" REL="nofollow">Six Until Me</A> and am planning to start trialing my Dexcom CGMS next Monday. I currently wear an insulin pump, too. :)<BR/><BR/>I'm so happy to hear that you and your daughter are happy with the results of your CGMS. I hope to have a similar experience.<BR/><BR/>Feel free to visit me over at my blog, and I'd love to add you to my blogroll, if that's cool with you.<BR/><BR/>Best,<BR/>Kerri.Kerri.http://www.blogger.com/profile/11463843830570716380noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-17871557716126247962007-06-17T13:00:54.342-06:002007-06-17T13:00:54.342-06:00Thanks for sharing your experiences with the CGMS on your daughter. My daughter who is 6 3/4 refuses to try it yet, probably becuase I got it first and she doesn't want to do anything I ask do first.<BR/><BR/>Perhaps your daughter could write an honest paragraph or two about life with the CGMS vs. life with all those finger tests. My girl is really afraid of the insertion of the sensor, which I personally think doesn't hurt at all or at least less than infusion sets.<BR/><BR/>Anyway, thanks for the info!<BR/><BR/>Wendy<BR/>www.DiabetesSelfCare.blogspot.comWendy Morganhttp://www.blogger.com/profile/10585149956339276528noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-13186637569187877342007-06-09T12:39:36.573-06:002007-06-09T12:39:36.573-06:00Hi! I saw your post at Wil's blog and I thought I'd come say hi. I write a blog about my life with diabetes at <A HREF="http://lemonlemonade.com" REL="nofollow">Lemonade Life</A>. Come say hi sometime! Looking forward to reading more about your experiences with the CGM. I'd love to try it, but just can't afford it right now! <BR/><BR/>Cheers!<BR/>AllisonAllisonhttp://www.blogger.com/profile/09845901120926051578noreply@blogger.comtag:blogger.com,1999:blog-5307417753171730896.post-69344605554839256252007-06-04T02:12:28.755-06:002007-06-04T02:12:28.755-06:00I'm so glad you guys like the arm sites. <BR/><BR/>What a great family picture! <BR/><BR/>I hope you and your sister worked things out. Stay sweet, and be sweet to yourself, JamieA Journey of a Momhttp://www.blogger.com/profile/17390385414069558232noreply@blogger.com